Name: Jarod
Jarod had his first episode at 4 months (a status clonic seizure). He developed normally for his first 12 months to the amazement of the doctors (after having so many frequent seizures). After this he stopped progressing and in some situations regressed. His myoclonics started at about the same time as his first major seizure and he’s been on medication since that age, with very minimal success until now. He is now 6, but developmentally estimated at 15months. He’s just started to make a few tentative independent steps which is promising. Speech remains difficult for him with only a few recognisable words being demonstrated, although he is otherwise very vocal and loves to be heard.
Sex: male
Date of birth: 1998
Now lives in: Australia
Epilepsy info
Diagnose:
Dravet's Syndrome, We are awaiting genetic testing for the SCN1A mutation.
type(s) of seizures:
tonic, clonic- tonic, absence, myoclonic & complex partials
frequency of seizures:
November 2004: Currently tonic clonics every 6 weeks
Medications used
Current:
epilim, clonazepam and topamax: we are getting our best seizure control ever
Previous:
phenytoin: allergic – caused rash, termp, status seizures
clobazam: blamed this for his developmental issues at age 1, now believe it was the Dravet’s
Lamotragine: great developmentally, but believe it was responsible for myoclonic status lasting all day.
Alternative Treatments
Fish oil: He’s currently learning and developing well but I can’t necessarily credit the fish oil with this success as he is also having far fewer seizures. It certainly isn’t hurting.
Personal Notes
Contact
Mum: Shazza, shazzas01@hotmail.com
Shazza's Website: 
http://members.optusnet.com.au/shazzas01
You just have to check Little Man's Book!!
