Name: Sydney
First Seizure at 5 months
Sex: female
Date of birth: April, 2001
Now lives in: KY, USA
Epilepsy info
Diagnose:
Dravet's Syndrome 2004, after seeing 4 Neurologist in 3 different states! Positive for scnia mutation
type(s) of seizures:
Tonic Clonic, Tonic, Myoclonic, Absence, Drops, Partial, Complex Partial
frequency of seizures:
some days 300 seizures, some days only 50 seizures
Medications used
Current:
IVIG, Topomax, Clobazam (her best combo yet!)
Previous:
Keppra, Depakote, Ativan, Lamictal, Topomax, Klonopin, Zongran, Diastat, Fosphenytoin and more!
Alternative Treatments
Ketogenic Diet
Chiropractic care- Clinical Neurology-Visual Therapy
Personal Notes
At it's worst..
As many as 4 Tonic clonics a day (but rarely, thank God!)
Myclonics as often as every 5 seconds
6 status over 1/12 hours each
immune to Diastat..using Versed
Currently..(June 2006)
IVIG, Topomax, Clobazam!
Sydney has a certified seizure alert dog.
Contact
Mum: Dina (HopeForSydney@hotmail.com)
Sydney's Website: www.HopeForSydney.com
