Dravet's Syndrome, Severe Myoclonic Epilepsy in Infancy

Sites with information about Dravet's Syndrome / Supportgroups (from professionals and parents) :

An email group for carers and parents of kids with SMEI (severe myoclonic epilepsy fo infancy) also called Dravet Syndrome. Encouraging friendship, exchange of information and support:

The International Dravet Syndrome Epilepsy Action League:

The Epilepsy Research Centre (previously known as the Epilepsy Research Institute) is Australia's leading clinical epilepsy research group.

Personal sites from Dravet-Kids:

Shazza's Site, Mother of Jarod (Little Man), a Dravet-kid. You can find Jarod's story here and a lot of information:

Sydney's Site, Living on Faith ~ Looking for a Miracle:

A Miracle for Alex:

A Dravet Butterfly, Vanessa:

We do not want to advertise for any company here, but here you can find companies who have useful products or interesting information at their site:

The manufacturere of Topamax®, the site also contains the Patient Information Leaflets: